A new institute for research into rare diseases has opened at KU Leuven. Leuven.IRD aims to ensure that patients receive a diagnosis and treatment more quickly.
More than half a million people in Belgium live with a rare disease. In Europe, a disease is given this designation if it affects fewer than 1 in 2,000 people.
Patients suffering from a rare disease have to wait a long time for a correct diagnosis and effective treatment. Leuven.IRD aims to change this.
By bringing researchers together and focusing on a more holistic approach, you are ensuring the best possible treatment
“We want to stimulate groundbreaking research and expand the range of care available to these patients,” says Lien Beckers, the institute’s manager. “That’s why we are bringing together experts from various fields at this institute.”
These experts will come from the fields of genetics, neurology, paediatrics, ethics, psychology and engineering.
It is estimated that there are between 6,000 and 8,000 types of rare disease. Leuven.IRD will also better inform the public about these conditions and is intended to be a centre of knowledge and expertise in the field.
“This mission is important, even crucial,” said Health minister Frank Vandenbroucke. “By bringing researchers together, promoting interdisciplinary collaboration and focusing on a more holistic approach to rare diseases, you are ensuring the best possible treatment for patients.”